Anjali “Jali” Senhttp://lymeisafourletterword.com/
Lyme Disease Survivor, Activist & Blogger
If you know me, you know that I’m a fun-loving, adventurous, free spirit. I am also a very caring and compassionate person, and have tried to do what I can to help less fortunate individuals all over the world. I have been one of the directors for the Rotaract of Club of Chicago’s International Service Project for the past two years (sadly, I have needed to take a step back because of my health issues). I love my life and have enjoyed every second of it to the fullest. I had everything going for me- amazing friends and family, a graduate degree and successful career, and beautiful life with a bright future. Unfortunately, I suddenly and mysteriously became very ill and everything started falling apart. I was desperate for answers and searching frantically, but finding none. I could feel myself slowly dying, but no doctor could help me or provide me with any answers or direction.
Thanks to a client of mine who has Lyme Disease, I was informed how to get accurate testing for Lyme, and my results from the Western Blot IgG/IgM came back positive. I was diagnosed with Late Stage/Neurological Lyme Disease at the age of 28. Very soon after, I found out that I had a GIANT mass (hemangioma) on my liver, which required a very invasive surgery to remove the mass. So that, on top of the Lyme Disease, is a lot to try to deal with.
It has been a long road already, and I have a huge battle ahead of me. Not only am I fighting a very serious and progressed disease, but also the ignorance about or denial of Lyme Disease by the mainstream medical community. I am fighting for access to proper treatment, insurance coverage, and ultimately my life. I am not alone in this, for there are so many other Lymies (that’s what we call ourselves- it’s a club you definitely don’t want to be a part of) out there with the same story. It’s time for things to change. It’s time for the truth to be exposed. Please follow my journey and help me in spreading awareness. Much love.